The Pain Toolkit
Self-management support devised by Pete Moore, who himself lives with persistent pain. Includes a long list of links to a variety of charities and support for long-term conditions: www.paintoolkit.org.
Live Well with Pain
Supported self-management resources developed by people living with pain and professionals working with them: www.livewellwithpain.co.uk. Includes links to the Ten Footsteps – can be used to support education programmes for patients or as an alternative for people who feel able to work through things on their own or with a little support from their healthcare team.
Pain Concern
Pain Concern is a charity based in Scotland which provides information for people living with pain, their carers and healthcare professionals: https://painconcern.org.uk. They have a regular podcast, Airing Pain, which highlights various areas of pain management as well as getting experts (professional and lived experience) to talk about topics of interest and new developments in research. The Self-Management Navigator Tool can help people get the most out of discussions about their pain at appointments with healthcare professionals.
Living Well with Pain
A website created by Tina, who lives with persistent back pain and sciatica. Provides information about sciatica and methods of managing and living better with it. Tina also shares her experience of navigating healthcare services and communicating with professionals about her condition which can be helpful for other people to learn from: https://livingwellpain.net.
Chronic pain resources from healthtalk.org
A repository of videos of people talking about living with a range of different health conditions, including a section on Chronic pain. Living with pain can be an isolating experience and sharing experiences can help people feel less alone and give insight into different approaches which others have found helpful (or not).
Flippin’ Pain
Flippin’ Pain’s mission is to raise awareness of the science of pain and change the way we think about, talk about, and treat persistent pain. The team provides webinars that can be accessed by people with pain and healthcare professionals as well as live events featuring experts from all over the world: https://flippinpain.co.uk.
Pain Revolution
The Flippin Pain work is based on that of Pain Revolution in Australia: www.painrevolution.org/. They have a short film called Tame the Beast, which explains persistent pain mechanisms.
EPP Cymru
Patients can self-refer to the Education Programmes for Patients for chronic pain: https://performanceandimprovement.nhs.wales/functions/quality-safety-and-improvement/improvement/our-work/epp/.
British Pain Society
The British Pain Society is a multi-disciplinary organisation that promotes best practice and research in pain. They have a section on their website for people living with pain with links to British Pain Society information and external resources: www.britishpainsociety.org/people-with-pain/.
Faculty of Pain Medicine
The Faculty of Pain Medicine provides patient information leaflets on pain medicines accessible via a QR code.
Retrain Pain
Free online course for people living with pain. Designed to aid understanding and start on the path to self-management: www.retrainpain.org/.
NHS Online Studio
A range of videos are available to help and encourage people to move, including Tai Chi and yoga-based exercises: www.nhs.uk/conditions/nhs-fitness-studio/.
Short films for people with pain:
Useful books: