You should discuss with your patient the reasons why you need to make an IPFR request and why you believe the proposed treatment is beneficial for their clinical condition.
Before you and your patient agree to submit an IPFR, please ensure that you have discussed the likely benefits and risks of the proposed treatment and any available alternative treatments, including no treatment. It is important that you make your patient aware that the panel may choose to decline to fund the treatment and what the options would be in this circumstance.
You also need to explain to the patient that the IPFR administration team will retain a copy of the application form as part of the administration process. This information will be used to help inform future planning requirements by identifying patient cohorts both at a local and national level. Data will also be used for the production of an annual report on IPFRs which is required by the Welsh Government. In doing so, the IPFR administration team will ensure that the patient identity remains confidential.
A patient may wish to opt out of having their information added to the database. It is your responsibility to inform the IPFR administrator if this is the case.